Monday, September 19, 2011

What you may not know...

I narrowly missed Invisible Illness Week, but I still wanted to share as it is important.  Here are 30 things I want you to know about my invisible illness.

1. The illness I live with is: type 1 diabetes.

2. I was diagnosed with it in the year: 2003.

3. But I had symptoms since: About two months before diagnosis.

4. The biggest adjustment I’ve had to make is: Wow, is there one big adjustment with diabetes? It changes your whole life.

5. Most people assume: That there is only one type of diabetes, type 2, and that we are all the same. Type 1 diabetes is an autoimmune disease…it has nothing to do with eating habits or exercise.

6. The hardest part about mornings are: Setting my day up to have good blood sugars. If I don’t eat breakfast, correct, or fly through the morning pretending diabetes doesn’t exist, I usually have a crappy day of meter readings.

7. My favorite medical TV show is: House, or Scrubs.

8. A gadget I couldn’t live without is: Meter. But, I am also pretty attached to my pump and my dexcom. I also don’t want to live without a smart phone ;) Just kiddinggggggggg.

9. The hardest part about nights are: Anxiety. Blood sugars can be a little unpredictable.

10. Each day I take 1 pill & 1 vitamin: On top of type 1, I also have horrific allergies. I also cannot live without insulin, so I take that alllllll dayyyyyy.

11. Regarding alternative treatments I: I have type 1 diabetes, there are no other alternative treatments. No insulin, I die. DIE! So, keep your ridiculous bullshit treatment to yourself. Don’t you think if I could exercise this away I would!! DIE without INSULIN, get it?

12. If I had to choose between an invisible illness or visible I would choose: Invisible.

13. Regarding working and career: Diabetes is my career. Some days I wish that weren’t the case, but it has molded me into the person I am. I would have washed the windows at JDRF to work here. Now, I am happy to say, I would still do that.

14. People would be surprised to know: I am actually a really good diabetes role model for teens. I get it. I take really good care of myself.

15. The hardest thing to accept about my new reality has been: About to hit the ten year, not new anymore.

16. Something I never thought I could do with my illness that I did was: This has yet to be determined.

17. The commercials about my illness: Are usually dead wrong. Or, aimed at type 2 diabetes.

18. Something I really miss doing since I was diagnosed is: Not carrying anything with me when I leave the house.

19. It was really hard to have to give up: I wanted to be an astronaut, but now, no such luck. Just kidding! Your life is what you make it!

20. A new hobby I have taken up since my diagnosis is: Don’t have one!  Carb counting?  :)

21. If I could have one day of feeling normal again I would: I would not know what that means at first.

22. My illness has taught me: Sometimes life deals you a different hand. It is what it is. Also, science is super important. I wish you could understand that America!

23. Want to know a secret? One thing people say that gets under my skin is: “My grandmother had diabetes…and she died.” No. 1, how is that appropriate? No. 2, probably not the same type, and No.3, does that help you relate to me? No!

24. But I love it when people: Ask questions and become educated.

25. My favorite motto, scripture, quote that gets me through tough times is: I am not sure I have one. My family, friends, and myself get me through the tough times.

26. When someone is diagnosed I’d like to tell them: It gets better. It may not get easier, but it gets better.

27. Something that has surprised me about living with an illness is: I am still the same person.

28. The nicest thing someone did for me when I wasn’t feeling well was: Encourage me.

29. I’m involved with Invisible Illness Week because: I have an invisible illness. One that people don’t always understand. I feel I need to…I have to.

30. The fact that you read this list makes me feel: Like we are changing the view!

4 comments:

Holly Veras said...

Hi Nikki! My brother is 21 (22 in October) and has had type 1 diabetes since he was 7 years old. God...it can be such a depressing disease. He wants to be a cop, hes taking criminal justice classes at school as a full time student but over the summer decided to get a full time job but he took third shift. So his sleeping was all out of whack and so was his eating and blah blah blah. needless to say...within a month he had two seizures. The second was worse than the first. The last time I remember him having a seizure before those two times was when he first got diagnosed. He was just a little boy. He's okay, but it's scary ya know? I showed my mom your blog and it's really helpful to see somebody else's point of view and to know that we are not alone. It's annoying when people with type 2 think they understand, or other people who don't even know what the hell they're talking about make stupid comments like "Isn't he supposed to be overweight in order to have diabetes?". I know I don't have diabetes but sometimes I feel like I do...I feel for you guys. Anyways..enough with my rant. Just letting you know you're encouraging.

Anonymous said...

Awesome....encourage on woman!

Megan said...

This is spot on. I love reading your posts!!

Scott K. Johnson said...

Hi Nikki!

I hope you are well! I totally agree with the adjustment thing, it doesn't just happen once, it's a constant adjustment! Great list. :-)