Monday, September 19, 2011

What you may not know...

I narrowly missed Invisible Illness Week, but I still wanted to share as it is important.  Here are 30 things I want you to know about my invisible illness.

1. The illness I live with is: type 1 diabetes.

2. I was diagnosed with it in the year: 2003.

3. But I had symptoms since: About two months before diagnosis.

4. The biggest adjustment I’ve had to make is: Wow, is there one big adjustment with diabetes? It changes your whole life.

5. Most people assume: That there is only one type of diabetes, type 2, and that we are all the same. Type 1 diabetes is an autoimmune disease…it has nothing to do with eating habits or exercise.

6. The hardest part about mornings are: Setting my day up to have good blood sugars. If I don’t eat breakfast, correct, or fly through the morning pretending diabetes doesn’t exist, I usually have a crappy day of meter readings.

7. My favorite medical TV show is: House, or Scrubs.

8. A gadget I couldn’t live without is: Meter. But, I am also pretty attached to my pump and my dexcom. I also don’t want to live without a smart phone ;) Just kiddinggggggggg.

9. The hardest part about nights are: Anxiety. Blood sugars can be a little unpredictable.

10. Each day I take 1 pill & 1 vitamin: On top of type 1, I also have horrific allergies. I also cannot live without insulin, so I take that alllllll dayyyyyy.

11. Regarding alternative treatments I: I have type 1 diabetes, there are no other alternative treatments. No insulin, I die. DIE! So, keep your ridiculous bullshit treatment to yourself. Don’t you think if I could exercise this away I would!! DIE without INSULIN, get it?

12. If I had to choose between an invisible illness or visible I would choose: Invisible.

13. Regarding working and career: Diabetes is my career. Some days I wish that weren’t the case, but it has molded me into the person I am. I would have washed the windows at JDRF to work here. Now, I am happy to say, I would still do that.

14. People would be surprised to know: I am actually a really good diabetes role model for teens. I get it. I take really good care of myself.

15. The hardest thing to accept about my new reality has been: About to hit the ten year, not new anymore.

16. Something I never thought I could do with my illness that I did was: This has yet to be determined.

17. The commercials about my illness: Are usually dead wrong. Or, aimed at type 2 diabetes.

18. Something I really miss doing since I was diagnosed is: Not carrying anything with me when I leave the house.

19. It was really hard to have to give up: I wanted to be an astronaut, but now, no such luck. Just kidding! Your life is what you make it!

20. A new hobby I have taken up since my diagnosis is: Don’t have one!  Carb counting?  :)

21. If I could have one day of feeling normal again I would: I would not know what that means at first.

22. My illness has taught me: Sometimes life deals you a different hand. It is what it is. Also, science is super important. I wish you could understand that America!

23. Want to know a secret? One thing people say that gets under my skin is: “My grandmother had diabetes…and she died.” No. 1, how is that appropriate? No. 2, probably not the same type, and No.3, does that help you relate to me? No!

24. But I love it when people: Ask questions and become educated.

25. My favorite motto, scripture, quote that gets me through tough times is: I am not sure I have one. My family, friends, and myself get me through the tough times.

26. When someone is diagnosed I’d like to tell them: It gets better. It may not get easier, but it gets better.

27. Something that has surprised me about living with an illness is: I am still the same person.

28. The nicest thing someone did for me when I wasn’t feeling well was: Encourage me.

29. I’m involved with Invisible Illness Week because: I have an invisible illness. One that people don’t always understand. I feel I need to…I have to.

30. The fact that you read this list makes me feel: Like we are changing the view!