Tuesday, September 11, 2007

Mean People

Look what someone commented on my blog...

Wasn't even brave enough to leave their email. Oh well. What do they know!? By the way, I am not correcting the moron's spelling mistakes.

"But what has the JDrF done? Really? They recently announced they have surpased the 1 Billion dollar mark funding diabetes research. With what results? Zero. Has the machine become it's own fuel? I wonder what the parents who founded the JDrF back in 1970 would say. Are their kids still alive? When will this damn disease ever be cured?"

In rebuttal, the women who founded JDRF are still strongly involved. There has been quite a bit of promising research through JDRF not to mention outreach. I believe in JDRF with my entire heart and soul and I know they will be the ones to find us a cure. If you want examples give me your email and I will proudly list the research. Until then, quit being a jerk. If you don't like it. Don't read it.

End rant.

24 comments:

Nicole P said...
This comment has been removed by the author.
Nicole P said...

That comment above was me....

Trying again: Nikki - This person doesn't seem all that mean - just frustrated... :( Aren't we all? It feels like we've waited a long time for a cure that's not come... It gets under some people's skin - and everyone wants someone to blame - JDRF is an easy target. Of course, the person also needs an attitude adjustment and a less on in etiquette, but I'm wondering if they're just frustrated and venting... Nicole

George said...

good point Nicole. I am all about tact so it bugs me when people don't think about what they say (type) sometimes.

I hope that person was looking for a scape goat. I am a fan of the JDRF.

Handmade Dork said...

I am also a fan of JDRF and this blog. Thank you for posting. My 14 year old is a type 1 and I've been really worried about his attitude toward his diabetes lately. I know it's to be expected, frustration, but learning how to teach him to channel his frustration into something healthy is really difficult right now. Thank you for putting your life out their for others to read and think about!

Anonymous said...

Nikki,

I hope everything is going well at the JDRF. Because you work with the JDRF and are living with type 1 diabetes, I thought you might be interested in helping out the International Diabetes Federation (IDF).

We are in the midst of our preparations for the first UN-observed World Diabetes Day (www.worlddiabetesday.org) on 14 November this year, and I wanted to ask you if you would like to help us to spread awareness of this worldwide event and the theme we have chosen for it this year - Diabetes in Children and Adolescents.

It is estimated that over 200 children develop type 1 diabetes every day and there's no question that the disease often hits disadvantaged communities the hardest, and that children in the developing world can die because their parents are unable to afford medication. In many countries diabetes is still considered an adult disease and as a result can be diagnosed late with severe consequences, including death. Even after diagnosis many children experience poor control and develop complications early.

This is why one of our key objectives for World Diabetes Day this year is to double the number of children covered by the Life for a Child Program - http://www.worlddiabetesday.org/go/wdd-2007/life-for-a-child. We also want to encourage initiatives that can help to reduce diabetic ketoacidosis (diabetic coma) and to promote the sort of healthy lifestyles which can prevent the onset of type 2 diabetes in children.

A version of the diabetes circle, the icon we used for our Unite for Diabetes campaign http://www.unitefordiabetes.org/ has now been adopted for World Diabetes Day and we have produced a number of web banners that you can view and download here http://banners.worlddiabetesday.org.

The way in which you can help us spread awareness of World Diabetes Day is to add one of the banners to your own blog, which we would really appreciate.

The UN's World Diabetes Day Resolution (61/225) was really just the first goal of an ambitious campaign that we have been leading. This is the first time a non-communicable disease has been recognised as a serious threat to global public health and we are hoping now to further raise awareness globally of the disease that is predicted to contribute to 6% of the world’s mortality in 2007.

If you would like to know more about the UN Resolution and our plans for World Diabetes Day this year, just drop me a line and I will get back to you with more information.

Many thanks,
Stephanie Tanner
IDF - Communications Assistant

mike said...

This comment is off-topic, but its the most recent post so I'm leaving it here anyway.

I just wanted to thank you for this blog. I found it about an hour ago by googling "Diabetes Sucks."

I was diagnosed with T1 2 weeks ago. Just trying to cope. Glad I found your site, and I plan on visiting frequently.

Anonymous said...

Nikki,

I just wanted to thank you for posting the World Diabetes Day banner. It looks great. I hope work at JDRF is going well.

Enormous thanks,
Stephanie Tanner
IDF - Communications Assistant

Anonymous said...

I don't think this person was being "mean", just asking a valid question. What is the JDRF doing to cure Type I diabetes?
Maybe you could come and answer some of these?

http://www.islet.org/forum/messages/49082.htm

http://www.islet.org/forum/messages/49092.htm

http://www.islet.org/forum/messages/49094.htm

Anonymous said...

Here is another good one!
http://www.islet.org/forum/messages/49114.htm

Anonymous said...

I think I like this one best.
Still waiting for a reply.
http://www.islet.org/forum/messages/49058.htm

Anonymous said...

Yet another good JDrF post.
http://www.islet.org/forum/messages/49297.htm

Still waiting for your response.

ABC Talk Back said...

Hello, Nikki,

The Talk Back team of ABC News in New York City came across you blog. ABC NEWS is launching a new website which aims to increase the awareness of Diabetes as well as provide information about the illness.

We are contacting you to ask for your help! You can participate by sending in the following:

1) YOUR VIDEO DIARY
In a 25-45 second video clip, share with ABC your story of living with the disease. What are your biggest challenges & how do you overcome them?

Do you own a digital camera? Most cameras have a video function that allows the user to record 30 second-1 minute videos. Once recorded, you can upload the video to your computer the same way you'd view digital snapshots!

ABC News is specifically requesting 15-45 second videos.

Here's an example from another related project:
Talk Back: Kathy-Ellen's Story
http://abcnews.go.com/Video/playerIndex?id=3782376

2) FAVORITE DIABETIC RECIPES
Have a favorite low-sugar treat or tasty main course? Type out your recipe in a word document(yourname_recipe.doc) and send it to us.

HOW TO SUBMIT VIDEOS & RECIPES:
1) Via cell phone
Record a 15-45 second clip and email it to: icaught@abcnews.go.com

2) Via the web:
http://abcnews.go.com/icaught/TalkBack/story?id=3770460

We look forward to hearing from you & thanks again for your participation. Should you have any questions about this project, email us back at talkback@abcnews.go.com.

We look forward to hearing from you!

~The ABC News "Talk Back" Team

Anonymous said...

Another example.

http://www.islet.org/forum/messages/49552.htm

Nikki, we are still awaiting your response.

Nikki said...

I'm still waiting on your email...just in case you didn't read that in the post. Don't be a coward.

Jeff said...

Hi Nikki. You’ve been tagged for the Random 7. Here are the rules:

1. Link to the person’s blog who tagged you.
2. Post these rules on your blog.
3. List seven random and/or weird facts about yourself.
4. Tag seven random people at the end of your post.
5. Let each person know they've been tagged by leaving a comment on their blog.

Amber-Bams said...

So I see you've been tagged but I am tagging you again!

Selina Wragg said...

well done! You go girl x

www.selinawragg.co.uk

Anonymous said...

Nikki, although I am not a fan of islet encapsulation, as this poster is, he does have several good points concerning the JDrF.
Can you please commment?

Thanks!

http://www.islet.org/forum/messages/50168.htm

Anonymous said...

This sums up what many people feel about the JDrF and their lousy 38 year failure against Type I diabetes.

http://www.islet.org/forum/messages/50235.htm

Someone mentioned the possibility of suing the JDrF, that sounds like a good way to bring the failures of this organization out into the open.

Emmaspapa said...

If I were you I would block your troll's IP from your comments. He/She is obviously a wierdo intent on harassing you.

Our family is starting to get active with JDRF. We feel they are more attuned to the needs of T1s.

Emmaspapa - Father of Brensdad and grandfather to Emma & Brenden.

Anonymous said...

Emmaspapa, why is this person a "weirdo" simply for questioning the JDrF?
I have asked repeatedly, what has the JDrF done over the last 38 years for people with Type I diabetes?
Where has the over $1 BILLION dollars that donors have contributed gone?

Anonymous said...

Grass roots efforts to sue JDrF. If you are interested, please read.
Thanks for this forum.
http://www.islet.org/forum/messages/50321.htm

http://www.islet.org/forum/messages/50329.htm

http://www.islet.org/forum/messages/50338.htm

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