Friday, April 28, 2006

Just another D Day

Today I turned in my CGMS system and on Monday I get the results of this annoying thing. First of all I would like to say to anyone who is planning on using the CGMS system, it is not something you get used to. It is a pain in the butt, but hopefully will help me fine tune my numbers.

When I was turning in the CGMS today I was getting on the elevator and this really friendly man joins me. He proceeds to ask me what is on my hip. I don't mind answering this, most of the time I like to educate people about T1 diabetes. I let him know it is an insulin pump and I haveT1 diabetes. He then says, "I haven't gotten that far along yet, (referring to "having" to be on a pump) I have T2 diabetes." He was such a nice man, but I couldn't help but think, hello, I didn't make myself have to have insulin, and you are planning in your future to get to where you are "that far along"? Maybe I am just irritated because I am tired and it is rainy and gloomy here today. I don't know. I wish that when they decided to name the disease of T1 and T2 diabetes, they honestly wouldn't have chosen the same name.

Another story, on Tuesday when I was at the endo to get the CGMS started and they were going over how to use it and everything, the nurse, who was speaking out loud to herself, was filling out some paperwork. She was saying like the dates, and type of insulin, and then she says T2 diabetic, controlled. I said wait, I have T1 diabetes, and I said this really annoyed. She was like oh sorry. Then I said something really nasty and I regret saying this, but I was irritated. "Do I look like I have T2 diabetes?" Yes, I know not all T2 diabetics are overweight, not all of them are old, and not all of them control their bg by pills, yes I know this, but truthfully the majority of them are. The nurse then proceeds to lecture me on stereotypes and blah blah blah and all the while I am wanting to scream, IF YOU HADN'T SAID THAT OUT LOUD YOU WOULD HAVE RECORDED THE WRONG INFORMATION FOR ME, YOU JERK, but I just sit and there and wonder where in the heck she came up with the I had T2 and why she said that. I am confused, I am small, really small, always have been, on an insulin pump (most T2 aren't), wtf man? I don't know, I just needed to vent. I hope no one is offended by anything I said. I am just irritated. I didn't do anything at all to bring on my T1 and most of the time I hate it. I hate that people do not understand the disease. I hate that people make assumptions, like that it was my diet, or exercise, that caused it. I was active my entire life, entered college weighing less than 100 lbs., was a dance minor, specializing in ballet and tap, how could I have brought this on myself. How could people jump to the conclusions that I have T2 diabetes and why would they? Sorry so long, I am just really, really frustrated and annoyed today. Let me know if you have a similar experience :)


Kathleen Weaver said...

For every always skinny T1 diabetic, there is an always skinny T2 diabetic. Seriously.

And it isn't a disease that the T2's bring on themselves. They can only push the onset as long as possible.

But you are entitled to your temper tantrum. Diabetes isn't fun for either types.

And wonder if your paperwork got submitted as a Type 2 after all and that is why you are having insurance issues? I'd ask the doctor's office.

And yeah, some days I get pissed off, because while I'm a Type 2, I'm on a pump and choose tight control. I do it because my dad was diagnosed at 42 (same age I was), and died at 48 after being diagnosed with congestive heart failure at 46 (same age as I am now). My Type 2 friends tell themselves that I have worse diabetes. But no, I'm just trying to keep from going the way my dad did.

Nikki said...

My insurance is messed up? Since when? On my medical records it says T1 diabetes. I also remember stating in my rant that I know that all T2 diabetics aren't blah blah blah, but most are. Honestly, the statistics are not in favor of your argument.

Andrea said...

Honestly, yeah, that would bother me too. I guess sometimes I do resent the fact that T2's could have prevented their disease from happening by making better lifestyle choices,when I had no control over getting this. And also the fact that their disease seems a bit easier to manage and control than the disease I am faced with. But then I think that you can't really understand how easy (or hard) things are for someone else without experiencing things from their perspective. Plus, to have that resentment towards someone else doesn't change things for me or make things easier...

JMO :)

Allison said...

Well, this isn't really related (well, it's kind of related, which is why I'm writing it), but on Wednesday I finally made an appointment with an adult endocrinologist. I'm 20 years old and I still go the pediatric endocrinologist. The receptionist asks me during the phone call, "Type 1 or Type 2?" and it just floored me. NO ONE has ever asked me to tell them what type I was because I've always 1) been a kid or 2) been at the pediatric endocrinologist, where 99.9% of us are Type 1s. It was creepy. I almost felt insulted that she would even ask me, but then I realized I was talking to an adult endocrinologist now and they deal with both types equally. It was very strange.

End rant.

Johnboy said...

There is so much ignorance in the world.

In the end, we are responsible for our own actions, thoughts and feelings.

I have found that what works best for me is to live my life in the best and most healthy way I can, and try not to worry about what other people think.

Sometimes, it's easier to say than to do.

BetterCell said...

You are correct in your feelings Nikki. In addition to what I comented upon on my Blog site: bettercell, my nephew recently was diagnosed with Insulin Resistant Disease (Type 2). Since the Medical Profession is not willing to change the "name" as of yet(some have) I will continue to use IRD for Type 2.My nephew IS overweight, his wife is overweight, his children are beginning to show signs of being overweight, he owns a Pizza Shop. What more factors can you list before it all makes sense. It is almost a slow formula for Self-Destruction/Family Style. I gave him much information to read regarding IRD, but I do not even think anything was read. The old adage, "You can lead a horse to water but you can't make him drink".

Caro said...

I understand your frustration, particularly in this case, where the nurse who had access to your medical records made a major mistake. More times than I care remember I have been asked, when I've said to someone that I have diabetes, whether I control that with tablets, or whether I am Type 2. But when you look at the statistics, this is not so weird. The overwhelming majority of people with diabetes have Type 2, so many health professionals ask everyone who says they have diabetes whether they have Type 2 because the answer is likely to be yes 9 times out of 10.

I used to get irritated by the assumptions, particularly from medical professionals who I thought should know better. To be very honest though, I've gone past getting worked up about it.

I always remember that, as you say, not everyone fits the sterotype - while there are many people with Type 2 that could help themselves by losing weight, for many it isn't as simple as that. There are many other factors in the aetiology of Type 2, including a strong genetic predisposition that can lead to whole families developing it without being overweight or doing anymore to 'bring it on themselves' than a Type 1 does (i.e. nothing.)

And while Type 1 and Type 2 are very diferent, but both pose challenges. Some are very different, but many are the same.

As far as the name is concerned, yes for clarity names that are more different could be used. But they currently do have different names - Type 1 Diabetes Mellitus and Type 2 Diabetes Mellitus. For me the problem lies more in the dropping of those prefixes.

And that is another way to get over the frustration. I now tell everyone when asked that I have Type 1 Diabetes, rather than just diabetes.

George said...

I get mad becuase I am overweight and a Type 1. People always tell me, "you should just excercise so you can stop taking injections." I have yet to strangle someone for this but man, i want to! LOL

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Stephen Moran said...

I think Im as bitter and twisted as you are.
Your not alone.
Easy now...

J said...

I can see that most of you frustration came from that fact that people do not have all the FACTS and they think they do.. that is what I hate if you do not know something fine but if you act like you know it that gets me all the time .. and I wore the CMU machine for 3 days and they had to put so much tape on it cuz I sweat just moving my fingers lol and so it kept falling or tryin to fall out so I had to add more tape I was afraid every timd I moved that it was gonna come out wich equaled no sleep for 3 days and and extra device on my belt HELLO who the hell needs more things on their belt when there is already a pump.. anyway I can understand your frustration because by the 3 day I was like you need to take this out now .. it is not staying and the tape made my skin all red.. I was a bitch when I entered .. so I hear ya

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Anonymous said...

T1's have no choice. They can't prevent or slow it down but most of the ones I have met (including my daughter) take really good care of themselves. My daughter's eye Dr. told her that she has never met a stupid T1. Maybe we need to study the brains of this incredible group of people to find the cause!

dearryka said...

my grandma got t2 diabetics from having 8 kids and from dealing w her depression by eating.she was 25 when she was diagnosed ith t2 i recently did a project on it and a found out lots about the disease because a majority of my family has it and i fear i might develop it later on BTW i luv your blog